Contribute your Tubey Stories!

If you have great tubey stories, we want to hear from you! Having a tubey is tough, but your child is precious and amazing and we want to hear about her.

We are looking for a variety of tones and writing personalities and would like to get many different types of stories about your tubey, including a few funny ones, a few tearjerkers and everything in between.

If you have a great tubey story, whether it be explaining your journey or telling us about your amazing trip to Disney World or the park, tell us about it! We want to hear the good, the bad and the ugly about life with a child with the feeding tube....the challenges, rewards and everyday joys and difficulties that having a child with a feeding tube brings with it.

It doesn’t matter where you are on your journey, whether your child has had the feeding tube for his whole life, you’re just getting used to it, or your child is tube free now. We would like to hear from all of you. The book is going to be for parents at all stages and they would like to hear from everyone.

Give us your best advice, tell us what you wish you had known, and share the best stories about your tube fed child with other parents!

All submissions will receive a link to the completed e-book upon request. My goal is to bring comfort and hope to families in similar situations, as well as ones just starting their journey with the feeding tube.

These parents have questions and are full of uncertainty about their child’s future. Show them a child with a feeding tube who has thrived and lives a normal childhood aside from the tube. Show these parents that life does go on! Share your experiences with them so they can be better prepared and know what to look forward to.

The stories may be used for an eBook and/or our website. If possible, please include at least three detailed paragraphs that are properly written.

Please submit your tubey story on the form below. If you would like a link to the ebook once it it complete please be sure to include your email address. Thank you for your participation!

Tell us your heartwarming tubey stories!

Do you have a great story about this? Share it with us!

Once we get enough great tubey stories we will create an eBook for visitors to download.

If you do NOT want your story to appear in an eBook please specify it on the bottom of your story. Thank you!

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Our son Rocco got diagnosed with Eosinophilic Esophagitis in 2009. To be honest, the diagnosis was a relief, although we knew the treatment would be tough. …

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Our Sarah was born with gastroschesis, which is a condition where her intestines were outside of her body. The doctors whisked her away and immediately …

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